Hey Bridget, thank you so much for doing this, and for all the other excellent posts you've made about this disease, both here and elsewhere. Yes indeed - we must not let mastocytosis define who we are!
Thanks for sharing.. I think I really needed to hear that today! I am not sure what kind of masto I have, but had a biopsy and confirmed mastocytosis. urgh! Now what? How do I find out what kind? You don't have to answer, I am just venting. I am not going to let this define me.. but it does scare me hearing the way you have to carry all these meds.. I just deal with my misery, maybe I don't have to.. This is just freaking me out cuz after friggen 20+ years they finally figure it out.. so the way I have been feeling all these years, is it masto? or am I just kinda lame.. I feel crappy all the time.. sorry to whine.. just wanted to THANK YOU for posting.. I know you said you won't again..but it really helped me.
Hey Bridget, thank you so much for doing this, and for all the other excellent posts you've made about this disease, both here and elsewhere. Yes indeed - we must not let mastocytosis define who we are!
ReplyDeleteCan't wait to see the video, but right now I am on dial-up so it will have to wait a week or so. Be well.
ReplyDeleteThanks for sharing.. I think I really needed to hear that today! I am not sure what kind of masto I have, but had a biopsy and confirmed mastocytosis. urgh! Now what? How do I find out what kind? You don't have to answer, I am just venting. I am not going to let this define me.. but it does scare me hearing the way you have to carry all these meds.. I just deal with my misery, maybe I don't have to.. This is just freaking me out cuz after friggen 20+ years they finally figure it out.. so the way I have been feeling all these years, is it masto? or am I just kinda lame.. I feel crappy all the time.. sorry to whine.. just wanted to THANK YOU for posting.. I know you said you won't again..but it really helped me.
ReplyDeleteHi Bridget
ReplyDeleteThnx
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LOVE your attitude and your take on masto.
ReplyDelete