tag:blogger.com,1999:blog-3983970674487438009.post6488841653430069779..comments2023-10-15T08:35:34.255-07:00Comments on Living with Mastocytosis: A few thingsBridgethttp://www.blogger.com/profile/16721032881251569586noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3983970674487438009.post-70345736519819736802008-11-26T11:03:00.000-08:002008-11-26T11:03:00.000-08:00Anonymous - You would want to see an immunologist ...Anonymous - You would want to see an immunologist about this...If they feel you fit the criteria for masto they will do a blood serum tryptase test and a 24 hour urine histamine...from there they should be able to tell if your body is releasing an overabundance of histamines. In addition, if you have skin lesions that look like urticarea pigmentosa, they will do a skin biopsy.<BR/><BR/>For me, I have systemic masto + urticarea so I had all three tests done. In addition, it's common to have a bone marrow biopsy done, though i haven't had that because my tryptase and urine histamines were so high that it made the test redundant in my doctors eyes.<BR/><BR/>if you go to http://www.tmsforacure.com and contact one of the mods, they may be able to help you find a doctor in your area who is more familiar with masto, since most are not.Bridgethttps://www.blogger.com/profile/16721032881251569586noreply@blogger.comtag:blogger.com,1999:blog-3983970674487438009.post-42711898706129056862008-11-25T18:38:00.000-08:002008-11-25T18:38:00.000-08:00I think that I have mastocytosis. I have been sick...I think that I have mastocytosis. I have been sick for a year and a half and been to at least 30 doctor appointments. I've seen an ENT, pulmonologist and a GI doctor. My family dr gave up on me and told me to move on with my life. I just came across masto and my symptoms seem to fit really well. I mentioned masto to my GI doctor and he told me to stay off the computor. Is there a specialist or a test that I could ask for? I need help. I think I hate my life right now but I don't want to give up.Anonymousnoreply@blogger.com