Tuesday, July 13, 2010

hello hello

not much to update on the health front. my tryptase went up some, but by like, 10pts which is essentially negligible. I've flown 3x since my last post, the most recent was to move cross country from Boston to Santa Monica.

This is going to be an intense experience. In Boston I was spoiled by having some of the best healthcare ever available to me thanks to B&W's masto center, but here I'm on my own. There is a masto doctor in Long Beach, but I don't know much about him (he's a pediatrician who sees adult masto patients) and that's all good and well (though about an hour away)

I will go see some of my masto doctors in Boston in Sept as I am going back there for a wedding and my doctors worked to fit me into their schedules. Considering I'm relatively stable and only saw them once every few months, I think I could even keep this schedule up if need be.

Lots of acclimating going on. right now I don't have the majority of my stuff (we hired movers so it's in transit) and am staying in a furnished apartment.

I've noticed some things...I don't care about my health lately, or more specifically, I'm not hyper focused on it. I've been eating new foods (i've been adhering religiously to the low histamine diet, and even then i've been really scared to try new foods, but i'm slowly branching out) and trying new stuff when my husband isn't around. i went for a long walk alone to the beach yesterday. i haven't gotten a pcp yet.

i mean i know i need to do that last one, and i'll work on it this week, but the fact that i'm not freaking out...that seems good. it seems like acclimation.

one thing i'm curious about exploring out here is medical marijuana. i have had an increase of bone pain (i finally had a nuclear imaging test done in...may? which showed lesions in my spine and hip) and i sleep poorly due to sky high pgd2 levels and i'm guessing that weed could help with those things. i don't even know how one goes about it but i think it might be worth pursuing since I didn't fare too well on aspirin (i am going to try it again) and i don't want to fry my liver with tylenol.

otherwise, not too much else to report i guess. i have a swollen lymph node on my neck i might need to have biopsied, though chances are it's irritated because i've been getting all creative with my hair lately and i have some scalp irritation. of course i was all OMG LYMPHOMA but my doctors all told me to calm down (this was pre-move obviously)