one of my doctors told me that this exercise can be comforting for patients undergoing procedures without analgesics, so i figure what the hell. since my procedure doesn't require painkillers (though most patients do opt for them) we're going to try for no painkillers and light sedation/meditation to see how i do.
they told me that i should tell people to send me good thoughts tomorrow, especially around 7:45am EST, since that is when I will be going in for surgery. apparently the simple idea of people caring about you, or the fact that you are thinking of them caring about you, can provide a great deal of comfort and fortitude. Obviously I am a little dubious, but i'm also scared as fuck so i'll take what i can get.
so yeah, 7:45amish tomorrow. me and my kidney would appreciate it.
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Life with a chronic illness isn't all about spoons and complaining.
About Me
- Bridget
- I've been living with a rare neoplastic disease called Systemic Mastocytosis for a few years now. I want to use this space to detail my experiences with this illness, as well as to hopefully show other people suffering chronic illness that life does not have to be all about the "spoon theory" and limitations.
Links of Interest & More
- The Mastocytosis Society
- Mast Cell Disorders Forum
- Dr. Castells - My main Masto Dr.
- Patient Info
- My Mastocytosis Facebook Page
- National Organization of Rare Disorders - Mastocytosis
- Dr. T.C. Theoharides
- Kevin's Masto Blog
- Another Masto Blog - Great Links
- A Chronic Dose - A Chronic Ilness Blog
- Chronic Babe
- Low Histamine Diet - I Follow This
- Google Results on Mastocytosis
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3 comments:
You can handle this. You seem like a very strong woman, and your experience with the BMB was like nothing. I know surgery is a scary thought, but try to stay calm. Just know that you have touched others with your words and creativity. You have helped me so much in understanding our disease. I always look forward to reading your blogs. Thank you so much! You'll be fine don't worry:)
Tricia, thank you so much for your words of support, i cannot tell you how much they mean to me.
I didn't see your post in time, but will send happy recovery thoughts your way now, and hope everything went smoothly.
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