I don't know if you are on the Masto Med list but I saw this post today which I thought might interest you:
For your information....
I am told today that Dr. O'Lansky is now in practice in the Cleveland Clinic. She was in practice in Oklahoma. Spoke to the TMS Conference in Oklahoma and also was seen by several members of the Oklahoma Support Group.
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Life with a chronic illness isn't all about spoons and complaining.
About Me
- Bridget
- I've been living with a rare neoplastic disease called Systemic Mastocytosis for a few years now. I want to use this space to detail my experiences with this illness, as well as to hopefully show other people suffering chronic illness that life does not have to be all about the "spoon theory" and limitations.
Links of Interest & More
- The Mastocytosis Society
- Mast Cell Disorders Forum
- Dr. Castells - My main Masto Dr.
- Patient Info
- My Mastocytosis Facebook Page
- National Organization of Rare Disorders - Mastocytosis
- Dr. T.C. Theoharides
- Kevin's Masto Blog
- Another Masto Blog - Great Links
- A Chronic Dose - A Chronic Ilness Blog
- Chronic Babe
- Low Histamine Diet - I Follow This
- Google Results on Mastocytosis
3 comments:
thank you for the info. as it turns out, i had a doctor's app. yesterday and they are in the process of getting an app. with Dr. Akin. i don't really want to go, but need to establish a relationship with a doctor that understands this "condition". I appreciate the info. :)
She's apparently quite good as well, if you don't want to make the trek, but i've heard nothing but positive stuff about dr. akin. i am sure the trip will be more than worth it.
thanks bridget. i am actually from north western ohio so either trip is not a deal. i stated "i don't want to go" because i don't like to face the whole "sickness" thing. you know, i'm the sick wife.... i guess sometimes i'm in denial. i'm sure you understand :)
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