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Life with a chronic illness isn't all about spoons and complaining.
About Me
- Bridget
- I've been living with a rare neoplastic disease called Systemic Mastocytosis for a few years now. I want to use this space to detail my experiences with this illness, as well as to hopefully show other people suffering chronic illness that life does not have to be all about the "spoon theory" and limitations.
Links of Interest & More
- The Mastocytosis Society
- Mast Cell Disorders Forum
- Dr. Castells - My main Masto Dr.
- Patient Info
- My Mastocytosis Facebook Page
- National Organization of Rare Disorders - Mastocytosis
- Dr. T.C. Theoharides
- Kevin's Masto Blog
- Another Masto Blog - Great Links
- A Chronic Dose - A Chronic Ilness Blog
- Chronic Babe
- Low Histamine Diet - I Follow This
- Google Results on Mastocytosis
3 comments:
That's the most useful, illuminating and instructive hour and a quarter I've spent in a long while. Inspiring, yes, and also a timely slap in the face for those days I just feel flat and sorry for myself; those days when I allow mastocytosis to disable my spirit as well as my body. I can only dream what it must be to live such a life as Randy Pauch has lived - but of course, that's the whole point: it's up to each and every one of us, irrespective of circumstances, to live the best we can.
completely...what really struck me was that even in later interviews, he still had this air of peace about him that i found absolutely inspiring.
i think even if we don't get to experience all of the amazing things he did, so much of our lives is in the telling or how we choose to view it...we might not all get to meet captain kirk or work for disney, but that's no reason to not try to find similar joys in the things we do.
I agree - much food for thought. Thanks for posting the film.
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