Things are not looking great healthwise. I've been urinating blood on and off for the past few weeks...We had a bit of a red herring in that my partner came down with some sort of UTI-ish illness, and had assumed that they may have passed it to me. I did my three days of Cipro (never again) had a minor improvement in symptoms. Last week I had a cystoscopy performed (as bladder diseases are not uncommon with ISM) and it came back clear. My urologist was very impressed with how healthy my bladder looked.
Two days later and it was again with urine with gross blood (and when I say gross I mean visible, not OMG ICKY!) accompanied with some fabulous back and flank pain. Like, amazingly bad.
Back to the urologist who felt it might have been an infection caused by the cystoscopy, so I did another urine culture which came back negative.
So it means it's my kidney. I don't know if it's a cyst, polyp, disease, cancer, stone, or what. My urologist wants me to have a CT-scan with contrast.
For those of you really familiar with this illness, you know how exciting that option is for me.
Since I am sick with something, my mast cells are already out of control. I've been taking more Benadryl than I have in a year to stay stable, and because of that I am even more hesitant to go straight to the CT-scan with contrast. If I were feeling more stable, I'd be all for it. But my hr/bp has been all wacky, my fatigue is intense, and my pain levels are quite high. All of these factors make me less excited to go straight to a test where there is a very high risk of anaphylactic shock...because really, who wants to go there?
I've got an appointment to see my urologist this afternoon. I am hoping that we can see if we can use the CT scan as the last resort, since in my reading I've found that certain kidney problems can be found through various ultrasound techniques, regular x-rays, and CT-scans w/out contrast. Now, to be fair, if I'm going to have the CT-scan, I may as well go all the way and take it with the contrast since that is a -lot- of radiation for a body to handle...but yeah, in general it is not the ideal option for me.
So I've got a call into my Immunologists office to get a refill on my prednisone script (the bottle of pills I have is nearing its expiration date) and am a bit of a bundle of nerves.