Monday, August 31, 2009

i didn't let it get me down. today i went hooping with the kids at MIT and went shopping. Not the most adventurous of days, but I easily could've hid with my head under a pillow all day too.

3 comments:

Faith Berry said...

You're an inspiration!

Smith said...

For Many Peoples Mastocytosis Is a Mystry as this disease is not so common, Very Rare. But people who suffer from such disease must set a Example for those who dealing with it and you have done that...Cheers!!!

Mastocytosis is a difficult one to discuss only because it is a simple yet complicated rare disease. Basically it is when the body produces to many Mast Cells (key part of the immune system) excessive cells. There are two types of Mastocytosis Cutaneous (skin) or urticaria pigmentosa, which affects the outer skin and systemic which affects the inner workings of the body. For more info
Go To
http://www.fuelthemind.com/health/health/mastocytosis_disease.html

FueltheMind said...

Diagnosing Mastocytosis : your doctor can determine if you have cutaneous (skin) Mastocytosis after inspecting the skin, the may see the appearance of too many mast cells and do a biopsy to confirm any suspicions. Systemic Mastocystosis can be determined a few ways, through bone scanning, bone marrow testing, blood-work and also through urine. The high amount of the fore mentioned chemicals in the blood or urine is a way doctors can determine if you have the systemic type of this disease.