Sometimes it is hard reading the masto list. I am guessing the people in the most pain are the ones who are the most vocal, but sometimes i feel like I'm faking it. Sure sometimes I get flushy, my throat bothers me, I get weird blood pressure fluctuations, but in general things aren't so bad. i don't shock, I've never shocked, never needed my pen, needed my inhaler once. I take a ridiculously low dose of meds (the only one I'm maxed out on is gastrocrom) so sometimes I feel like I'm faking it. The fatigue, osteoporosis, bone pain and body covered with lesions are obvious proof (aside from my tryptase levels and urine histamine levels), but sometimes i feel like I don't get the whole thing. So many people are so angry, so resigned, so bitter...sometimes I don't know if my input is good or not. I mean, I'm not on the same level as many of those people. I'm not as healthy as a "normal" person, but I'm not as in bad a shape as many of my cohorts.
One weird thing is that some people are jonesing for the diagnosis. They haven't gotten it yet, they've had doctors tell them they don't have it, but they need it. i don't get that. I mean, having an answer to all the weird blood tests, the fatigue, the pain, it's great, but man, I'd trade it all in a second for a day of normalcy again.
I've decided to start crafting to kill time until I acclimate to my meds and can work again. Obviously I'm coating myself in protective gear, such as a hardcore mask, non latex gloves, and moving forward I'm going to wear goggles.